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Slow news day

This post was dictated by Katie and then written by Paul. This is how I look on bad days like this The last few days have been rather tough. I’ve had several days where I haven’t really been able to...

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A little something to inspire you

Since I’m struggling to get posts up regularly at the moment, I’ve decided to start shorter posts with you. This is a more manageable way for me to write, and I’m guessing a lot easier for you to...

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I am sick, my sickness is not me

We’re home! Paul and I had an amazing time on holiday, although it has taken me a little longer to recover (a weird concept I know) and get back into a routine than I expected. I’ll be writing a post...

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Sometimes it’s the smallest things that are the hardest

I’m having a really rough couple of days. Last night in particular my muscular pain was off the chart. My usual muscular pain, which in itself is unbearable without my high doses of painkillers, feels...

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Drop out

Source: Google images I have to begin this post by sending my apologies for not posting last week. A combination of busy days (where I did too much) and “bad” days meant I wasn’t able to get the post I...

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I’ll be waiting…

I thought I’d share a little Spoonie wisdom with you today, courtesy of Siri. Love Katie x  

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Fatality or Fighter

This past week my health has been terrible. After a bright start, on Monday, I’ve been on a downward spiral knocking into everything on my way down. I’ve felt completely drained of energy. My...

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Spiralling: An update on our favourite chronic fighter

It seems like the beginning of all my blog posts begin this way: Katie has been very sick. In fact, it’s quite possible that she’s never been this sick before, and that really is saying something. The...

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Housebound: An Update

Housebound is a strong, and negative, word but it is a realistic description of Katie’s life, at the moment. Her sickness has regressed to a point where she’s only awake for a few hours a day. In those...

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My 15 minutes of fame

James Martin with Paul and I. James presents the show, and interviewed P and I. In September this year, Paul and I were given the opportunity to be part of a BBC programme called Operation Meet the...

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