Slow news day
This post was dictated by Katie and then written by Paul. This is how I look on bad days like this The last few days have been rather tough. I’ve had several days where I haven’t really been able to...
View ArticleA little something to inspire you
Since I’m struggling to get posts up regularly at the moment, I’ve decided to start shorter posts with you. This is a more manageable way for me to write, and I’m guessing a lot easier for you to...
View ArticleI am sick, my sickness is not me
We’re home! Paul and I had an amazing time on holiday, although it has taken me a little longer to recover (a weird concept I know) and get back into a routine than I expected. I’ll be writing a post...
View ArticleSometimes it’s the smallest things that are the hardest
I’m having a really rough couple of days. Last night in particular my muscular pain was off the chart. My usual muscular pain, which in itself is unbearable without my high doses of painkillers, feels...
View ArticleDrop out
Source: Google images I have to begin this post by sending my apologies for not posting last week. A combination of busy days (where I did too much) and “bad” days meant I wasn’t able to get the post I...
View ArticleI’ll be waiting…
I thought I’d share a little Spoonie wisdom with you today, courtesy of Siri. Love Katie x
View ArticleFatality or Fighter
This past week my health has been terrible. After a bright start, on Monday, I’ve been on a downward spiral knocking into everything on my way down. I’ve felt completely drained of energy. My...
View ArticleSpiralling: An update on our favourite chronic fighter
It seems like the beginning of all my blog posts begin this way: Katie has been very sick. In fact, it’s quite possible that she’s never been this sick before, and that really is saying something. The...
View ArticleHousebound: An Update
Housebound is a strong, and negative, word but it is a realistic description of Katie’s life, at the moment. Her sickness has regressed to a point where she’s only awake for a few hours a day. In those...
View ArticleMy 15 minutes of fame
James Martin with Paul and I. James presents the show, and interviewed P and I. In September this year, Paul and I were given the opportunity to be part of a BBC programme called Operation Meet the...
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